Registry Organization 1

  1. What is a cancer registry?
    A cancer registry is a system to monitor defined reportable malignancies diagnosed or treated in a defined population (such as, a facility or geographic area)
  2. What is the cancer registry used for?
    For program and administrative planning and for monitoring patient outcome
  3. What year and by whom was the first site-specific (being bone sarcoma) cancer registry established?
    In 1926, by Dr. Ernest Codman at Massachusetts General Hospital.
  4. Where and What year was the first population-based cancer registry established?
    In 1935 - Connecticut, US
  5. Who and in What year was hospital-based cancer registries were developed?
    In 1956 - the American College of Surgeons Commission on Cancer (ACoS), US
  6. Types of Cancer Registries

    What are the three general types of cancer registries?
    • Hospital/institution based registry
    • Central Cancer Registry
    •    Population based
    •    Non-population based
    • Specialty registry
  7. Types of Cancer Registries

    Hospital/institution based registry
    • Hospital
    • Network
    • Free-standing
    • Military
    • Veteran Administration (VA)
  8. Types of Cancer Registries

    What is a Hospital Registry?
    A Hospital Registry collects information about all cancer patients in a particular institution.
  9. Types of Cancer Registries

    What is a Central Registry?
    • A Central Registry collects information from several facilities that submit data to a central office
    • This includes the National Cancer Data Base (NCDB).
  10. Types of Cancer Registries

    Central cancer registry based
    What is a Population-based cancer registry?
    • A Population-based cancer registry collects information about all cancer patients who are residents of a particular state or geographic area.
    • Briefly: Collect data on all cancer cases in a defined population.
    • This includes: 
    •     Regional and State cancer registries in the US and Canada 
    •     National
    •         Surveillance, Epidemiology & End Results (SEER) Program, and
    •         National Program of Cancer Registries (NPCR), and
    •         Other national cancer registries that are in other countries around the world.
  11. Types of Cancer Registries

    Central cancer registry based   

    What is a Non-Population-based cancer registry?
    • A Non-Population based is from multiple sources
    • This includes:
    •    Department of Defense (DoD) Central Cancer Registry
    •    - Automated Central Tumor Registry (ACTUR)
    •    Department of Veterans Affairs (VA) Central Cancer Registry (VACCR)
  12. Types of Cancer Registries

    What is a Specialty Registry?
    A Specialty Registry collects information on one aspect or one type of cancer.
  13. Types of Cancer Registries

    Types of Specialty Registries
    • CoC's National cancer Database (NCDB) one of the oldest/largest in US
    • Familial and site-specific registries
    •    Central Brain Tumor Registry of the US (CBTRUS)
    •    Breast Cancer Family Registry (Breast CFR)
    •    Colon Cancer Family Registry (Colon CFR)
    •    and others (Session 1:Registry Operations pg 3)
  14. 1922
    The ACoS established the multidisciplinary CoC the first US organization to establish standards to ensure quality, multidisciplinary and comprehensive cancer care.
  15. Standard Setting/Registry Organizations

    American College of Surgeons (ACoS)
       Commission on Cancer (CoC)

    What 3 things does the CoC provide?
    1. Cancer Program Standards 2012, Version 1.1: Ensuring Patient-Centered Care

    2. Facility Oncology Data Standards (FORDS) Revised for 2012

    3. National Cancer Data Base (NCDB)
  16. Standard Setting/Registry Organizations

    American Joint Committee on Cancer (AJCC)

    What is the AJCC?
    • 1. Developed and implemented AJCC TNM Staging
    •     * AJCC Cancer Registry Staging Manual 7th Ed
    • 2. Lead the Collaborative Staging Task force development of CS
  17. Standard Setting/Registry Organizations

    Centers for Disease Control and Prevention (CDC)

    National Program of Cancer Registries (NPCR)

    What and When was developed by the CDC?
    • In 1992 - law was passed called the Cancer Registry Amendment Act
    • Supports state cancer registries and provide high-quality cancer incidence data
    • Collects data on cancer occurrence, type, extent location, and type of initial treatment
  18. Standard Setting/Registry Organizations


    State cancer registries

    List the purpose of state cancer registries?
    • Monitor cancer trends over time
    • Determine cancer patterns in populations
    • Guide planning & evaluation of cancer control programs
    • Advance research
    • Provide information for national database of cancer incidence
  19. Standard Setting/Registry Organizations

    Who and What does the IARC provide?
    • International Agency for Research on Cancer (IARC)
    •   Coordinates research across countries and organizations
    •   WHO/IARC Classification of Tumours (Blue bks)
  20. Standard Setting/Registry Organizations

    Who and What does the IACR provide?
    • International Association of Cancer Registries IACR
    • Fosters exchange of information between cancer Registries internationally
Card Set
Registry Organization 1
Cancer Registry CTR Exam