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What is a cancer registry?
A cancer registry is a system to monitor defined reportable malignancies diagnosed or treated in a defined population (such as, a facility or geographic area)
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What is the cancer registry used for?
For program and administrative planning and for monitoring patient outcome
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What year and by whom was the first site-specific (being bone sarcoma) cancer registry established?
In 1926, by Dr. Ernest Codman at Massachusetts General Hospital.
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Where and What year was the first population-based cancer registry established?
In 1935 - Connecticut, US
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Who and in What year was hospital-based cancer registries were developed?
In 1956 - the American College of Surgeons Commission on Cancer (ACoS), US
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Types of Cancer Registries
What are the three general types of cancer registries?
- Hospital/institution based registry
- Central Cancer Registry
- Population based
- Non-population based
- Specialty registry
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Types of Cancer Registries
Hospital/institution based registry
- Hospital
- Network
- Free-standing
- Military
- Veteran Administration (VA)
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Types of Cancer Registries
What is a Hospital Registry?
A Hospital Registry collects information about all cancer patients in a particular institution.
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Types of Cancer Registries
What is a Central Registry?
- A Central Registry collects information from several facilities that submit data to a central office.
- This includes the National Cancer Data Base (NCDB).
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Types of Cancer Registries
Central cancer registry based
What is a Population-based cancer registry?
- A Population-based cancer registry collects information about all cancer patients who are residents of a particular state or geographic area.
- Briefly: Collect data on all cancer cases in a defined population.
- This includes:
- Regional and State cancer registries in the US and Canada
- National
- Surveillance, Epidemiology & End Results (SEER) Program, and
- National Program of Cancer Registries (NPCR), and
- Other national cancer registries that are in other countries around the world.
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Types of Cancer Registries
Central cancer registry based
What is a Non-Population-based cancer registry?
- A Non-Population based is from multiple sources
- This includes:
- Department of Defense (DoD) Central Cancer Registry
- - Automated Central Tumor Registry (ACTUR)
- Department of Veterans Affairs (VA) Central Cancer Registry (VACCR)
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Types of Cancer Registries
What is a Specialty Registry?
A Specialty Registry collects information on one aspect or one type of cancer.
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Types of Cancer Registries
Types of Specialty Registries
- CoC's National cancer Database (NCDB) one of the oldest/largest in US
- Familial and site-specific registries
- Central Brain Tumor Registry of the US (CBTRUS)
- Breast Cancer Family Registry (Breast CFR)
- Colon Cancer Family Registry (Colon CFR)
- and others (Session 1:Registry Operations pg 3)
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1922
The ACoS established the multidisciplinary CoC the first US organization to establish standards to ensure quality, multidisciplinary and comprehensive cancer care.
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Standard Setting/Registry Organizations
American College of Surgeons (ACoS)
Commission on Cancer (CoC)
What 3 things does the CoC provide?
1. Cancer Program Standards 2012, Version 1.1: Ensuring Patient-Centered Care
2. Facility Oncology Data Standards (FORDS) Revised for 2012
3. National Cancer Data Base (NCDB)
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Standard Setting/Registry Organizations
American Joint Committee on Cancer (AJCC)
What is the AJCC?
- 1. Developed and implemented AJCC TNM Staging
- * AJCC Cancer Registry Staging Manual 7th Ed
- 2. Lead the Collaborative Staging Task force development of CS
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Standard Setting/Registry Organizations
Centers for Disease Control and Prevention (CDC)
National Program of Cancer Registries (NPCR)
What and When was developed by the CDC?
- In 1992 - law was passed called the Cancer Registry Amendment Act
- Supports state cancer registries and provide high-quality cancer incidence data
- Collects data on cancer occurrence, type, extent location, and type of initial treatment
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Standard Setting/Registry Organizations
CDC-NPCR
State cancer registries
List the purpose of state cancer registries?
- Monitor cancer trends over time
- Determine cancer patterns in populations
- Guide planning & evaluation of cancer control programs
- Advance research
- Provide information for national database of cancer incidence
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Standard Setting/Registry Organizations
Who and What does the IARC provide?
- International Agency for Research on Cancer (IARC)
- Coordinates research across countries and organizations
- WHO/IARC Classification of Tumours (Blue bks)
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Standard Setting/Registry Organizations
Who and What does the IACR provide?
- International Association of Cancer Registries IACR
- Fosters exchange of information between cancer Registries internationally
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