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Barriers to a 'Good Death'
- unfamiliar environments
- focus on prolonging life and avoiding death
- strangers caring for the dying
- nurses uncomfortable with emotions of self/family of dying
- viewed as personal/professional failure
- talking about death discouraged
- terminally ill folks remind us of our mortality
- nurses grieve when we see others grieving
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Loss
- removal, change, or reduction in value of something valued or held dear and the feelings that result
- responses vary per person
- Concrete-tangible
- Psychologica-intangible
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Necessary Losses
- Part of life/natural
- recoverable or replaceable
- maturational
- -form of necessary loss, occurs during normal life transitions, help develop coping skills for unplanned/unwanted/unexpected
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Actual Loss
- Tangible
- person can no longer feel, hear, or know a person or object
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Perceived Loss
- Intangible
- Subjective-defined per individual
- not easily identified by others
- easily overlooked by others
- individual interpretation of menaing affects the intensity of the grief
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Situational Losses
- not part of expected maturation experiences
- seems unnecessary
- sudden, unpredictable external events
- may result in multiple losses
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Grief
- Inner emotional response to a loss, exhibited in ways unique to each individual
- Coping process
- Affected by-past experiences, culture, spiritual beliefs
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Normal Grieving
- natural response to loss-physical, emotional, cognitive, behavioral
- lead to personal growth for the bereaved
- resolution of mental trauma of loss through a series of stages
- grief work-effort to acknowledge the pain associated with loss and integrate the loss into the future
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Dysfunctional grieving
- inability to accept the loss and move on with life
- unresolved grief, not able to reconcile new life with the way life was before the loss
- chronic/disruptive yearning
- do not rush to this diagnosis
- grief and time to grieve is very variable
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Anticipatory Grieving
- unconscious process
- may feel relief after the loss
- intellectual and emotional responses and behaviors to help a person move on to a healthier emotional state
- stressors may outweigh the benefits
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Disenfranchised Grief
- Marginal or Unsupported grief
- unable to openly acknowledge or publicly share grief
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Grief Response Variables
- Cultural background
- Developmental Factors - Age/Gender
- Situation or circumstances surrounding dying
- Psychosocial factors
- Previous experiences with grief
- Individual's physical condition
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Mourning
- Internal experience of grief and its expression outside of oneself
- Rituals of cultural/social acts to express thoughts and feelings of sorrow
- psychological stages occurring as one adapts to loss
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Bereavement
- both grief and mourning
- inner feelings, emotional responses, and outward behaviors of a person experiencing loss
- acute state of intense psychological sadness/suffering experienced after tragic loss of loved one
- Traditionally defined as being deprived through death
- Familial experience even communal ie 9/11
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Cultural & Religious Views of Death
- Death-accepting/Death-denying
- may be seen as end of existence or transition to another state of being/consciousness
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Death/Dying Attitudes
- Kubler-Ross first described process of dying in 1960's
- Traditionally viewed as preserved for the elderly
- 2000 focus on active/healthy life, youth-oriented
- Death gets in the way of Happy
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5 stages of grief
- Denial
- Anger
- Bargaining
- Depression
- Acceptance
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Factors influencing Loss/Grief
- Developmental stages
- Personal relationship
- Nature of Loss
- Coping Strategies
- Socioeconomic Status
- Culture/Ethnicity
- Spiritual/Religious Beliefs
- Hope
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Erikson's Developmental Stages
- Trust/Mistrust
- Autonomy/Shame-Doubt
- Intiative/Guilt
- Industry/Inferiority
- Identity/Role Confusion
- Intimacy/Isolation
- Generativity/Self-absorption-Stagnation
- Integrity/Despair
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Infant
no concept of death
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Toddler 2-6yr
Death is reversible such as sleep
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Young children 6-10yr
- Can accept finality of death
- associated with skeleton
- able to hide from it
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Middle age adults
more aware of own aging and physical changes
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Older Adults
- begin to experience anticipatory grief: physical changes, loss of independence/employment/relationships
- High risk for complicated grieving
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Support Systems
- quality and meaning of relationship lost
- availability of famliy, friends, health care workers
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Nature of the loss
- meaning of loss
- impact on patient's behavior, health, well-being
- visible loss = support
- private losses may mean less support
- sudden loss vs. expected loss
- violent deaths, suicides, multiple losses complicate the grief process
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Coping Strategies
- May use usual
- May need new strategy
- Adaptive/maladaptive
- Ego defense mechanisms
- Emotional disclosure-venting
- Focus on positive
- Negative focus may indicate higher degree of distress
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Socioeconomic Status
- Influences access to support systems & Resources
- Affects financial, educational, and occupational resources
- Money unable to replace tangible losses
- Money unably to control issues of loss
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Culture/Ethnicity
- background affects understanding and approach to grief process
- some cultures have specific times for grieving through rituals
- dictates acceptable expressions of grief
- provides stability where there is chaos and loss
- work/task oriented cultures
- no public displays of emotion vs wailing, ripping of clothing, body mutilation
- America - Individualism
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Spiritual Influences and Beliefs
- Spiritual Resources: their faith, sources of hope, meaning of life, religious rituals
- Spiritual well-being: higher power, connectedness to others and purpose of life - even in the end
-
Hope
- Energizes, comforts
- Provides meaning & purpose
- Determine sources of hope - spirtiuality, relationships, positive emotuions, anticipating the future, availability of resources, providing service for others
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Grieving Assessment
- Physical
- Psychological
- Resources Available
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Physical Grieving
- Sleep pattern/fatigue
- weight
- nutrition
- activity level
- pain & discomfort
- S/S of Illness
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Psychological Grieving
- Emotional state
- Decision making process
- Confidence level
- Coping Strategies
- Spirituality
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Resources during Grieving
- relationships
- social life
- support system
- financial situation
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Dysfunctional Grieving Assessment
- behaviors that interfere with functioning
- inadequate coping skills, poor relationships, substance abuse, loss of support systems, multiple unresolved losses
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Nursing Interventions for Grief & Loss
- Therapeutic Communication
- Support
- Educate
- References for other resources
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Expected Outcome of Nursing Diagnosis for Grief/Loss
- Identify/Express feelings freely
- FInish unfinished business
- Acknowledge impact of grieving process
- Dying with Dignity
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Palliative Care
- symptom management, not curative
- Good Death
- Pain/Symptom Control
- Psychological/Spiritual Care
- Enhance Quality of Life
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Hospice
patient's individual wishes are the focus and every attempt to meet those expectations is made
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Code Status
- DNR
- Full Code
- via POLST form
- Doctor's signature
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Active Euthanasia
Patient requests assistance in death coming sooner
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Passive Euthanasia
- Act of Omission
- Pulling the Plug
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Dying Process
- Emotional Signs
- Psycosocial/Spiritual
- Physiological Phases
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Nursing Interventions of Dying Process
- Comfort Care
- Positioning, cleansing
- Nutrition
- Communication
- Manage Pain
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