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children with special health care needs
a general term for infants and children with, or at risk for, physical medical conditions from gentic or metabolic disorders, birth defects, premature births, trauma, infection, or prenatal exposure to drugs
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chronic condition
disorder of health or development that is the usual state for an individual and unlikely to change, although secondary conditions may result over time
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pulmonary
related to the lungs and their movement of air for exchange of carbon dioxide and oxygen
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early intervention services
federally mandated evaluation and therapy services for children in the age range from birth to 3 years under the Individual with Disabilities Education Act
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cystic fibrosis
condition in which a genetically changed chromosome 7 interferes with all the exocrine functions in the body, but particularly pulmonary complications, causing chronic illness
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diplegia
condition in which the part of the brain controlling movement of the legs is damaged, interfering with muscle control and ambulation
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pediatric AIDS
acquired immunodeficiency syndrome in which infection-fighting abilities of the body are destroyed by a virus
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bronchopulmonary dysplasia (BPD)
condition in which the underdeveloped lungs in a preterm infant are damaged so that breathing requires extra effort
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rett syndrome
condition in which a genetic change on the X chromosome results in severe neurological delays, causing children to be short, thin-appearing, and unable to talk
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meningitis
viral or bacterial infection in the CNS that is likely to cause a range of long term consequences in infancy, such as mental retardation, blindness, and hearing loss
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ADHD
condition characterized by low impulse control and short attention span, with and without a high level of overall activity
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neuromuscular disorders
conditions of the nervous system characterized by difficulty with boluntary or involuntary control of muscle movement
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hypotonia
condition characterized by low muscle tone, floppiness, or muscle weakness
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hypertonia
condition characterized by high muscle tone, stiffness or spasticity
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gastrostomy
form of enteral nutrition suppost for delivering nutrition by tube directly into the stomach, bypassing the mouth through a surgical procedure that creates an opening through the abdominal wall and stomach
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medical neglect
failure of parents or caretaker to seek, obtain, and follow through with a complete diagnostic study or medical, dental, or mental health treatment for a health problem, symptom, or condition that, if untreated, could become severe enough to present a danger to the child
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spastic quadriplegia
a form of cerebral palsy in which brain damage interferes with voluntary muscle control in both arms and legs
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asthma
condition in which the lungs are unable to exchange air due to lack of expansion of air sacs. It can result in a chronic illness and sometimes unconsciousness and death if not treated
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work of breathing (WOB)
a common term used to express extra respiratory effort in a variety of pulmonary conditions
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mental retardation
substantially below average intelligence and problems in adapting to the environment, which emerge before age 18
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anaphylaxis
sudden onset of a reaction with mild to severe symptoms, including a decrease in ability to breathe, which may be severe enough to cause a coma
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early intervention services are based on:
developmental delays in one or more of the following areas: cognitive, physical, language and speech, psychosocial, or self-help skills
physical or mental condition with a high chance of delay
at risk medically or environmentally for substantial developmental delay if services are not provided
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estimated disabilities range for children
5-31%
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conditions that need high calories
cystic fibrosis
renal disease
ambulatory children with diplegia
pediatric AIDS
bronchopulmonary dysplasia (BPD)
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conditions that need low calories
down syndrome
spina bifida
nonambulatory children with diplegia
prader-willi syndrome
nonambulatory children with short stature
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failure to thrive (FTT)
inadequate weight/height gain with growth declines more than 2 growth percentiles
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Possible causes of FTT
digestive problems such as gastrointestinal reflux or celiac disease
asthma or breathing problems
neurological condition like seizures
pediatric AIDS
other medical and environmental factors
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toddler diarrhea
condition in which healthy growing children have diarrhea very often but there is no intestinal damage and blood levels are normal with no FTT or weight loss
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dietary cause of toddler diarrhea
excessive intake of juices that contain sucrose or sorbitol
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celiac disease
occurs in people who are sensitive to gluten, a component of wheat, rye, and barley
mostly prevelent in middle eastern or irish ancestry
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restricted food for people with celiac disease
anything made from flour (bread and pasta), or with wheat, rye, and barley as additive
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allowed food for people with celiac disease
- rice
- soy
- cornĀ
- potato flour
- oats (not much recommended due to contamination with gluten from wheat)
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conditions of food for spastic quadriplegia
- meal pattern needs to be small, frequent meals, and snacks to avoid tiredness during meals
- recommended foods are easy to chew, with small portions
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true food allergies
- are protein allergy
- estimated in 2-8% of children
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food allergies that may cause anaphylaxis
- milk
- eggs
- wheat
- peanuts
- walnuts
- soy
- fish
- (all of these are allergies due to their high protein)
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